I realize that I haven’t written a blog in about 5 or 6 months now. I blame life for that! ha. Honestly, I’ve been so busy with the girls, and things going on that by the time I have a minute alone I literally just want to vedge out!…but, here’s a little update regarding our Addy girl and how her first surgery went.
So, the day we had been anxiously awaiting snuck up on us, FAST. So fast! I was not particularly ready in any way to be going through what we were about to face but I knew that we would look back and wonder why we ever stressed it in the first place. Adalynn couldn’t have anything solid, or milk after 2am. We bathed her real well, fed her, put her to bed, and woke her at 2 to give her the last bottle she would have until about 4pm the next day. Brian’s parents came to stay with us so that Payton could be at home and to also be spoiled while we tended to the littlest of the fam. She had a BLAST!
The morning of Adalynn’s implant surgery we got up and got everything ready to go so that we could get to the hospital in time for them to have us checked in and ready to go! On our way down the hospital called us. (I was so concerned) Brian answered and I couldn’t hear a thing the nurses were saying. I thought they were going to cancel her surgery, which would have upset me soooo, very much. I was so ready for this day to be over I couldn’t imagine having to wait any longer, but much to our surprise, they were ahead of schedule. We were able to check in early get to our room, and get her back way faster than we expected! The anesthesiologist, is a great friend of ours, who I actually grew up babysitting his kids, so I had an extra sense of ease letting her leave with him to head back to her surgery…it made it soooo much easier to watch her leave in his arms, although inside I wanted to just cry my eyes out. At this point in our journey I feel like I have to hold all of my emotions in to be strong for my husband, and Payton, and Adalynn. I see all of her progress myself, so I almost feel like Adalynn and I have a special little connection. No one really knows what all goes on behind the scenes of things. Having a child with special needs is FAR from easy, and I praise every mother that has to deal with anything extra that a healthy, and 100% hearing child doesn’t have to deal with. We go to therapy and appointments, multiple times every single week! It is like a second full time job, aside from my first full time job of a mother to two, alone everyday! No one truly understands our particular situation, and all are different. It makes things more real for me, because I feel like Addy and I are a unit. I do everything with her, all the things that she goes through, I go through (not physically, but emotionally) I watch her grow, in many ways…I grow with her. Its actually funny because before I had children I feel as if I was a little more emotional than I am now that I do have children. Maybe it’s a Mom thing, but I just tend to “try” to keep it together.
Anyways, Adalynn’s surgery only lasted about 2 and a half hours. We were expecting 4 so we had my parents and Brians with Payton, come keep us company until it was over. Well, as soon as we walked down to hang out, they called us up to meet with Addy. I was sooo excited but also had crazy thoughts. Why was it over so quickly? Was something up?…walking up we saw our surgeon and he has a smile on his face and told us it went great and smooth. I was so relieved and so ready to hold my sweet girl. They brought us up to a post op room, we would be staying overnight to have her monitored so we had to be moved.
When they brought her to us that assured us she was still very out of it, but also being very cuddly. I snatched her as fast as I could. Poor Brian. Dad’s are pretty much chop liver when it comes to this stuff. She was ALL mine. I honestly didn’t know how I’d sleep because I wanted to watch her every waking second. Once we got settled in the room for the night, we had Payton and my parents and Brians come up to see her, even though Addy was all out of sorts. It distracted us for the most part, but I was still very concerned about Addy, so it was hard to relax.
Once our families left we decided we should get some food so we took turns going to the cafe. I went, and came back to eat while Addy slept and then Brian went while I watched her. I will never forget my short lived sense of guilt in that moment alone, sitting eating my burger watching my little baby sleep, but with IV’s in her arm, and a massive bandage and head wrap over her head. I felt as if we made the wrong choice. How could we do this to our 10 month old baby. Put her through this pain before she could decide on her own, make her own choices?? What if we did the wrong thing? I cried alone until Brian came back, and pulled myself together. My least favorite thing is letting someone see me cry…now that we are 2 months post op, and one month post activation with her learning at a very fast pace, I can’t imagine not going through with her implant surgery. I don’t know how I could live without my baby ever hearing me tell her, I love her.
I will say, recovery was so hard. The first night was just waking and crying, and trying to get pain meds (just Tylenol) in her, making sure her head wrap was on ok, and that she was comfortable. There is NO where to sleep for the parents. I feel for you, parents that have to stay more than one night…it was so hard. Her therapist warned that she would have her total normal energy the next day and that we would need a sitter or someone to keep an eye on her all day so we could catch up on sleep. And man, was she right. We both slept awful. And the next day, it was hard to take even an eye off of her. She was on the go. She was completely back to normal other than some head wrap, gauze and a tiny bit of pain. We were zombies for a few days.
We are so happy that we are on the road to hearing with Adalynn. We have a very long way to go, but every little step is huge for her. We have her second implant surgery scheduled for June 21st ( Brian and mines 4th wedding anniversary!) what a way to celebrate! Ha! We will have plenty more to celebrate after this milestone in our lives so we’re happy to give up the day this year! Thank you all for prayers and thoughts. Addy has done tremendously well since being activated. Her therapists are more than thrilled with her progress for “one month old hearing” she’s progressed so well, and she is so very smart that I’m scared 😂 her and Payton will have me whipped in no time. But don’t tell ’em!
By the way, we LOVE CHOA! We have thought about moving out of state numerous times for better living, and financial opportunities but having them here makes us stay! And I don’t regret it one bit. They are TOP NOTCH of Peds! Atlanta is the place to be if you need any pediatric care. I recommend it 10/10 to anyone that asks me!
I’ll try to remember to write a blog about our activation day and how life has been since then!